A film that illuminates the courage and the strength of people who live with a genetic death sentence: the inheritable and incurable Huntington’s disease.
The genetic death sentence portraits Anja, Jutta, Yves, Marleen en Mario, residents of the only nursing home for patients with Huntington’s disease in Flanders, Belgium. Although they’re all very different, there’s one thing that connects them: their illness. Huntington’s been haunting their family for decades and has thinned them out. It slowly destroys mind and body, with death waiting around the corner. They are all well aware that the decline of their clarity, their intellectual and fysical capacities means an inevitable goodbye to the group and to the last bits of their dignity and their identity. They all handle it in their own way. The film shows how they struggle in their daily life while they’re on an irreversible, strenuous journey through the decay of their body and mind, with only their humour and small fortune to ease the pain. An emotional film about being forced to let go your freedom, personality and abilities, in short everything that makes you who you are.